#GeneEditSummit

In Depth Report from April 29th Paris Human Gene Edit Meeting

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Editor’s note. Caroline Simons attended both the April 28th (see her report on that here) and 29th Paris meetings on human gene editing/genetic modification. Today, we have her in depth report on the April 29th meeting. I have posted her piece in full with only minor edits. If you are in a rush you can …

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Paris human gene editing workshop summary

Académie-Nationale-de-Médicine

Editors note: This is a guest post from Caroline Simons who is attending the two Paris meetings on human gene editing. For more background on those meetings see here. By Caroline Simons There were just over a hundred participants at the workshop organized by the Federation of European Academies of Medicine, the UK Academy of …

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GOP Congress seeks ban on CRISPR of human embryos

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GOP members of Congress want a ban on CRISPR of human embryos. They are moving to block genetic modification of human embryos using the new CRISPR gene editing technology. The new proposed spending bill part way through the approval process with the nugget of good news of a possible NIH spending boost after many years …

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Just freakin do it: patients voice impatience on CRISPR for genetic diseases

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Both before and particularly now after the big human gene editing summit in Washington, D.C. at the National Academy of Sciences, I’ve talked with patients about their views on this new technology including at last week’s World Stem Cell Summit. One of the most striking moments of the DC summit was when the mother of …

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Perspectives: no human genetic modification moratorium from organizers of #GeneEditSummit

GeneEditSummit

I just got back from a historic summit on human genetic modification in Washington, D.C. New genetic modification technology, termed CRISPR-Cas9, has both made genetic modification a relatively simple matter for scientists and human genetic modification much more likely in the near future. Heritable human genetic modification could prevent some rare genetic diseases so there …

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Live Blogging #GeneEditSummit Day 2 Post #1: Governance of human gene editing

Barbara-J.-Evans

Now we have an interesting panel starting on questions of governance on human gene editing. This will focus on institutional and national levels of governance. Pilar N. Ossorio, University of Wisconsin, Madison, and Morgridge Institute for Research, is introducing the panel. Key question: how should emerging technologies being governed? Jonathan Kimmelman, from McGill, was the first …

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Human Gene Editing takeaways from day 1 of #GeneEditSummit

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The Summit on Human Gene Editing got off to a great start yesterday. I have four posts summarizing all the talks and my impressions on the points made (here, here, here, and here). What was the overall gestalt including from talking to people informally? What were the big takeaway messages so far from Day 1? Diverse views. …

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Live Blogging #GeneEditSummit Day 1 Post #4: Societal Implications of human gene editing

Hille-Haker

This is post #4 of my live blogging of the #GeneEditSummit today. It is focused on societal implications so I’m really looking forward to it. You can read posts 1-3, here, here, and here summarizing the talks and key points from the meeting so far. Annelien L. Bredenoord, University Medical Center Utrecht, chaired the session. John Harris, …

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