patient advocates

CIRM Board Member Sheehy raises serious concerns re: proposed reduced role of patient advocates

CIRM is holding a meeting today on how to respond to the IOM recommendations on CIRM operations. I’m a CIRM grantee who is live blogging this meeting. My opinions are my own. The IOM, amongst other things, recommended that patient advocates on the CIRM Board not be allowed to be voting members of the CIRM …

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Lessons from patients: stem cell clinical trials unlikely option for most patients

This is the first in a new series of posts I’m doing in lessons I’ve learned from the ever-increasing number of patients who contact me directly or are readers of this blog who make great comments. Today’s post is focused on the lack of availability of and exclusions of the vast majority of patients from …

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Why scientists must be advocates too: Jeff Sheehy

Jeff-Sheehy

CIRM Board Member, Jeff Sheehy, has a wonderful piece in Nature Medicine on why patient advocates play a critical role in decision making on research priorities (hat tip to Amy Adams who first blogged on Sheehy’s piece). Patient advocates bring a unique and valuable perspective to the table. Their role in guiding CIRM research funding …

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