January 20, 2021

The Niche

Trusted stem cell blog & resources

CIRM Board Member Sheehy raises serious concerns re: proposed reduced role of patient advocates

CIRM is holding a meeting today on how to respond to the IOM recommendations on CIRM operations. I’m a CIRM grantee who is live blogging this meeting. My opinions are my own.

The IOM, amongst other things, recommended that patient advocates on the CIRM Board not be allowed to be voting members of the CIRM Grants Working Group (GWG). CIRM proposed today essentially following IOM’s recommendations on patient advocates losing their vote on the GWG.

Board Member Jeff Sheehy raised what I concur are serious concerns about taking votes away from patient advocates.

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