Patients

Stem cell blogging dilemmas: patient disclosures, lawsuits, & more

stem-cell-blogging-dilemmas-

After all this time writing on The Niche here since 2010, I still haven’t entirely resolved certain blogging dilemmas including when a patient discloses something. It’s kind of a jungle out there on the internet. What kinds of tough blogging dilemmas do I face? I’m just going to give you some examples of the more common …

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Patients stem cell Q&A#1: can clinic injections cause GVHD?

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People ask me questions about stem cells all the time so I decide to do a new blog series answering your questions. Today’s post is  the first in this new stem cell Q&A series. Past series have included my Elephant in the Lab series that provides some insights into the craziness that sometimes goes on …

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Bad Batch podcast is must listen for stem cell community

Bad-Batch-Podcast

I’m relatively new to podcasts, but am enjoying a new stem cell-focused one called Bad Batch by medical journalist Laura Beil, which I’ve been listening to in the car as I commute. I just finished episode three. I’m curious to hear how the next few episodes of the story unfold. I talked and emailed with …

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If you’ve had a stem cell therapy, how was your experience?

stem-cell-treatments

Over the years I’ve asked patients to talk about their experiences getting a stem cell therapy of one kind or another. One particular post in 2016 has drawn almost 400 comments, many from patients. The insights provided by these patients and the questions asked in the comment stream have provided a unique window into what’s …

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Upbeat Burt team pub on stem cells for MS comes with uneasy back story

Types-of-Multiple-Sclerosis

Stem cells for MS? How promising is that? A new paper gives stronger reason for hope, but unfortunately this story is more complex than it seems on first glance. New Paper The idea of using a stem cell-related approach to treat multiple sclerosis (MS) has been around for a long time holding major promise, but …

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Arthritis patient with pain’s email on stem cell clinic & my answer

Knee arthritis, stem cell therapy for knees

Stem cells for arthritis and pain are hot topics these days and I’m getting an increasing number of patients reaching out with questions and sharing their situations related to arthritis or pain (or usually both together). I asked one arthritis patient who reached out to me if they would be OK with me sharing their …

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15 still unanswered interview questions for stem cells for vision SCOTS trial docs

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There’s a lot going on in Florida with non-FDA approved stem cell offerings even just related to stem cells for vision problems alone, but while US Stem Cell has drawn the most attention related to patient allegations of severe vision loss in Florida after fat stem cell injections in eyes, another group I’ll loosely call the …

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Update on stem cell treatment cost for 2018 from ongoing poll

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I get asked many questions about stem cell therapies, but one of the most common over the years has been about the stem cell treatment cost. For instance, a reporter might ask, “How much does a stem cell treatment for MS cost?” and a patient might ask me, “How much is a fair cost for …

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Patient’s Powerful Story on Multiple sclerosis and Getting Experimental Stem Cells

Caroline-Wyatt

Multiple sclerosis (MS) can be an extremely debilitating disease that ultimately is fatal in some patients and reduces life expectancy and quality overall substantially. An MS patient named Caroline Wyatt, who works at the BBC, had the courage to open up in full detail on the BBC about having MS, her experience getting an experimental …

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Some thoughts on taking risks in science & medicine

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Are you a risk-taker or do you do everything possible to avoid risks? Taking risks in science is necessary, but is there a wise way to take the risks you do? Science and medicine need a certain amount of risk and risk-takers to make transformative leaps forward. The risks in biomedical science can be conceptual …

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