September 22, 2020

The Niche

Knoepfler lab stem cell blog

If you’ve had a stem cell therapy, how was your experience?

stem cell treatmentsOver the years I’ve asked patients to talk about their experiences getting a stem cell therapy of one kind or another.

One particular post in 2016 has drawn almost 400 comments, many from patients. The insights provided by these patients and the questions asked in the comment stream have provided a unique window into what’s going on out there.

There is a remarkable diversity of readers on this blog from all over the world. I know we have a lot of readers who are patients and have had stem cell treatments. Every week I get emails from a few people asking about stem cell treatments and clinics.

You can see my guide for patients here, which includes things to think about when considering a stem cell therapy. I also recommend this resource from ISSCR for patients.

Please weigh in here in the comments on this post if you or a loved one have had a stem cell treatment of some kind.

  • What was it like?
  • What cells were used?
  • What was the background of the person doing the injection? What about the person who owns/runs the clinic?
  • How much did you have to pay per stem cell injection and overall?
  • What condition were you hoping to improve?
  • Where did you get the treatment? A clinic? A university of hospital?
  • If it was a clinic, how did you find out about the clinic and would you refer someone else to them?
  • Anything else you’d like to share?

Feel free to remain anonymous if you prefer in terms of the name you use. Note that otherwise, if you use your actual name it will appear with your comment so please give that some thought.

Importantly, since The Niche is not meant to promote unproven stem cell clinics, please keep your comments balanced and non-promotional. If you felt positively about an experience explain why in concrete terms rather than saying something like “It was a miracle cure!” Also, if you received discount treatment for giving testimonials, have some ties to the clinic/doctor in question, etc. then you should disclose that. While mentioning specific clinics by name in your comments is not prohibited, give that some thought too as again this site is not going to promote unproven clinics.

On the flip side, you are welcome to share negative experiences too but don’t go overboard. For instance, this is not the place to accuse a clinic or doctor of committing a crime, fraud, being evil, etc. If you feel you had a serious side effect or there were other problems with how it all went, describe what you think happened in straightforward terms.

Overall, this post and comments are not meant as medical advice. Talk to your own doctor.

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